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For adults with active ankylosing spondylitis

Clyde the Guide offers ways to get the most from your doctor appointment.

Use these helpful ideas below to prepare to talk with your doctor and get the most from your appointment. Learn about symptom tracking, summarize your experience, and more.

Write your Cue Card

Your Cue Card is a summary of your experience with ankylosing spondylitis (AS). It’s a few sentences that summarize everything you want to share with your rheumatologist. You’ll find that this simple tool will help you better express yourself, leading to a confident conversation.

Refer to your Cue Card before or during your appointment.

  • Frequency: How often are my symptoms appearing?  

  • Duration: How long do my symptoms last? (If they come and go, but never really go away, share that information too!)

  • Severity: How intense have my symptoms been?

  • Changes: Am I seeing differences in my symptoms or even new symptoms?

  • Day-to-day impact: Is AS getting in the way of daily activities and what I want to do?

  • Control: Are you able to manage and control your symptoms?

Ready to get started? Grab a pen and paper or open the notes app on your phone to write your Cue Card. View two examples below to see what your Cue Card might look like.

Cue Card 1

In the last ___ [time since last appointment], I have had ______ [describe symptoms, for example, back pain, joint pain, stiffness, etc.] that typically last _____ [duration]. This has made me feel ____ [describe their impact].

Cue Card 2

A year ago, I was able to _____ [describe an activity], but now, I find it ______ [describe the feeling].

Your Cue Card can help you kick off the conversation about how AS has affected your daily activities and what you want from your treatment.

Feel ready to talk

Now that you have a Cue Card to help you share how AS has impacted your daily activities since your last appointment and a list of things you want to discuss with your rheumatologist, try these tips.

Conversations in action

An online survey found nearly one-quarter of patients don’t believe their doctor understands them, their health risks, or their priorities. These videos can help you overcome communication challenges that may arise.

You have learned new ways to talk to you doctor about AS.

You’re ready for a better appointment experience

Everyone’s treatment journey is different. But now you have a toolbox of resources at your fingertips to make the most out of your doctors’ appointment. Bookmark this page so you can come back to this guide anytime you want.
 

What will your first step be today?

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